Special Issue "Decision Making at the Border of Viability and in Critically Ill Newborn Infants"
Deadline for manuscript submissions: 5 April 2024 | Viewed by 12590
Interests: bronchopulmonary dysplasia; respiratory distress; non-invasive ventilation; lung development; lung injury; microbiome; neonatal infection; preterm follow-up; long-term outcome of preterm infants; parental psychosocial support
Interests: family centered care; quality indicators, implementation processes; human milk banks; all topics and information related to improving maternal and newborn health - breastfeeding, ROP, RSV, etc.
The tremendous advances in neonatal medicine in recent years have made it possible for very immature preterm infants to survive. Newborn infants with complex and severe congenital disorders and malformations can be offered therapeutic interventions to prolong life and possibly even fully repair congenital defects. In the care of preterm and ill newborns, parents and the professional team have to consider neurodevelopmental outcome, disability-free survival, and quality of life in addition to survival alone when deciding on initiation, continuation, or discontinuation of active therapy. The right to live might come into conflict with the idea of perfect health in a situation where the patient´s presumed will cannot be determined. On the other hand, the right to die in a futile situation might come into conflict with parents’ or the professional team’s resistance to end therapy.
Professional teams together with parents are facing an increasing number of situations where the therapeutic options have to be considered in the light of all these challenges and in situations where it is difficult to give a definite prognosis for the individual child. The broad heterogeneity of guidelines toward initiation, continuation, and discontinuation of active therapy across Europe and the industrialized world reflects the differences in legal, ethical, cultural, religious, and personal convictions. During parental counselling, all these aspects need to be taken into account to meet the parental needs. The term “decision-making process” best reflects the thorough and repeated consideration of all aspects in order to come to a well-founded decision and treatment consensus of the specialized interdisciplinary hospital team and the child’s parents.
In this Special Issue, we aim to look at these difficult ethical questions from the perspective of Christian Catholic and Protestant churches, Judaism, and Islam, as well as from a legal perspective in the context of actual outcome data of these vulnerable patient populations. Palliative care as a treatment option will also be discussed, as well as the very important view of parents of preterm and critically ill newborn infants. While it will not be possible to fully answer all questions, we hope to help clinicians through this Special Issue to be able to better counsel parents and guide them through the “decision-making process”.
Prof. Dr. Harald Ehrhardt
Dr. Silke Mader
Manuscript Submission Information
Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.
Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Children is an international peer-reviewed open access monthly journal published by MDPI.
Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2400 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.
- critically ill newborn
- extremely preterm infant
- decision making
- palliative care
- border of viability