New Challenges in Health Care Services among Patients with Spinal Cord Injury

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Healthcare Quality and Patient Safety".

Deadline for manuscript submissions: 2 August 2024 | Viewed by 2495

Special Issue Editor


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Guest Editor
Division of Physical Medicine & Rehabilitation, Department of Medicine, University of Alberta, Edmonton, AB T6G 2E8, Canada
Interests: spinal cord injury rehabilitation, including service delivery for rehabilitation, and also management of complications after spinal cord injury (e,g. pressure injury)

Special Issue Information

Dear Colleagues,

Persons with spinal cord injury experience significant changes in their physical, psychological and social status both from their initial injury and from many potential secondary complications that may become chronic conditions, requiring lifelong management. As a result, there are multiple health care needs that span across the continuum of care, necessitating the involvement by not only primary care and specialty clinicians, but also community support and services, vocational specialists, social and housing agencies, as well as policy makers with special expertise and knowledge on the care of persons with spinal cord injury. Appropriate coordination of these support and services with a person-centred approach is complex yet necessary, but it is not always possible or available among this diverse group of stakeholders. In fact, the gaps and challenges in lifelong support and service provision for persons with spinal cord injury differ greatly between jurisdictions and countries. Not only is the experience of persons with spinal cord injury affected, the issue with health equity has also been raised. This Special Issue aims to describe and address some of these challenges in support and service provision and coordination, to enhance the health care services of persons with spinal cord injury.

Dr. Chester H. Ho
Guest Editor

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Keywords

  • spinal cord injury
  • rehabilitation
  • healthcare delivery
  • patient experience
  • health inequities
  • patient navigation
  • transitions in care
  • model of care

Published Papers (3 papers)

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Research

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14 pages, 730 KiB  
Article
Implementing Lived Experience Workshops in Regional Areas of British Columbia to Enhance Clinicians’ Confidence in Spinal Cord Injury Care: An Evaluation
by Hannah Prins, Scott Donia, Shannon Rockall, James Hektner, Spring Hawes, James J. Laskin, John Chernesky and Vanessa K. Noonan
Healthcare 2024, 12(7), 731; https://doi.org/10.3390/healthcare12070731 - 27 Mar 2024
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Abstract
In British Columbia (BC), there are challenges accessing specialized spinal cord injury care and resources. This paper evaluated the impact of spinal cord injury health educational workshops delivered in regional communities that were informed by persons with lived experience. A community survey was [...] Read more.
In British Columbia (BC), there are challenges accessing specialized spinal cord injury care and resources. This paper evaluated the impact of spinal cord injury health educational workshops delivered in regional communities that were informed by persons with lived experience. A community survey was conducted with 44 persons with lived experience in a BC region to identify priority SCI health-related topics. Twenty-five topics were ranked from 1–14, with bowel and bladder management ranked 1 and 4, sexual health ranked 5, and pressure injuries ranked 7. Clinical perspectives on the priorities were collected from 102 clinicians in the BC region, who independently ranked 14 of these SCI topics and considered the former 4 topics to be lower clinical priority (ranked 11–14). These priorities informed a series of SCI clinical education workshops held at healthcare facilities in three regional cities. The goals were to improve clinicians’ knowledge and confidence levels when managing spinal cord injury health and to facilitate person-centred care. Positive feedback demonstrated that educational workshops supported by lived experience perspectives effectively enhanced the clinicians’ understanding of spinal cord injury and their priorities. Future plans include engaging more administrators as part of this initiative and conducting workshops in other regions of BC. Full article
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17 pages, 1342 KiB  
Article
Measures for Persons with Spinal Cord Injury to Monitor Their Transitions in Care, Health, Function, and Quality of Life Experiences and Needs: A Protocol for Co-Developing a Self-Evaluation Tool
by Katharina Kovacs Burns, Zahra Bhatia, Benveet Gill, Dalique van der Nest, Jason Knox, Magda Mouneimne, Taryn Buck, Rebecca Charbonneau, Kasey Aiello, Adalberto Loyola Sanchez, Rija Kamran, Olaleye Olayinka and Chester Ho
Healthcare 2024, 12(5), 527; https://doi.org/10.3390/healthcare12050527 - 23 Feb 2024
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Abstract
Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert [...] Read more.
Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert stakeholders initially exploring and selecting existing measures or tools through a modified Delphi process, followed by choosing one of two options. The options were to either support the use of the 10 selected tools from the Delphi method or to co-develop one unique condensed tool with relevant measures to evaluate all four domains. The stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers. This includes any issues with care or support they needed to address at the time of discharge from acute care or rehabilitation and in the community at 3, 6, and 12 months or longer post-discharge. Once developed, the tool was made available online for the final stage of the protocol, which proposes that the tool be reliability tested prior to its launch, followed by validation testing by PwSCI. Full article
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Review

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27 pages, 699 KiB  
Review
Implementing Activity-Based Therapy for Spinal Cord Injury Rehabilitation in Canada: Challenges and Proposed Solutions
by Hope Jervis-Rademeyer, Lovisa Cheung, Nicole Cesca, Cindy Gauthier, Kristen Walden and Kristin E. Musselman
Healthcare 2024, 12(7), 703; https://doi.org/10.3390/healthcare12070703 - 22 Mar 2024
Viewed by 714
Abstract
Activity-based therapy (ABT) is a therapeutic approach with multiple benefits including promoting neurorecovery and reducing the likelihood of secondary complications in people living with spinal cord injury (SCI). Barriers and facilitators to ABT implementation for SCI rehabilitation have been studied from various perspectives [...] Read more.
Activity-based therapy (ABT) is a therapeutic approach with multiple benefits including promoting neurorecovery and reducing the likelihood of secondary complications in people living with spinal cord injury (SCI). Barriers and facilitators to ABT implementation for SCI rehabilitation have been studied from various perspectives through qualitative research. However, these viewpoints have not been synthesized to identify challenges of and strategies for implementing ABT across the Canadian healthcare system. Thus, the purpose of our study was to examine the current state of ABT in Canadian healthcare settings according to users’ perspectives. Our main objectives were to compare barriers and facilitators to ABT implementation across Canadian healthcare settings according to users’ perspectives and to identify optimal intervention strategies for ABT delivery across the Canadian healthcare system from acute to community care. We searched Scopus, CINAHL, OvidMedline, and other sources. Eligible articles were qualitative or mixed methods studies exploring ABT for adults with SCI in a Canadian healthcare setting. We analyzed qualitative findings through a thematic synthesis followed by a deductive content analysis. The Mixed Methods Appraisal Tool was used for critical appraisal. Nine articles were included. The thematic synthesis revealed two main themes: (1) factors influencing acceptance and adaptation of ABT across healthcare settings in Canada and (2) proposed solutions. The deductive analysis applied the Behaviour Change Wheel (BCW) to identify limited components of behaviour and appropriate interventions. To address ABT implementation challenges across the Canadian healthcare system, evidence-based interventions should target BCW subcategories of reflective motivation, social opportunity, and physical opportunity. Full article
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Planned Papers

The below list represents only planned manuscripts. Some of these manuscripts have not been received by the Editorial Office yet. Papers submitted to MDPI journals are subject to peer-review.

Title: Development and Implementation of the Interdisciplinary Collaborative Innovation Model for Experiential Learning to Enhance Healthcare Service Delivery
Authors: Stephanie Cimino; Stephanie Cornell; Olivia Crozier; Jordan Eggiman-Ketter; Juliane Hong; Thuvaraha Jeyakumaran; Stephanie Marrocco; Luxshmi Nageswaran; Abby Spadzinski; Dalton L. Wolfe
Affiliation: Parkwood Institute, Lawson Health Research Institute, London, ON Canada
Abstract: Objective: This manuscript will describe the development and impact of the Interdisciplinary Collaborative Innovation Model (ICIM), an experiential learning model used at Parkwood Institute, a tertiary specialized rehabilitation centre, to enhance rehabilitation activities and increase therapeutic intensity through the meaningful engagement of students. This will be done through case studies associated with the development and implementation of various rehabilitation initiatives including different forms of physical activity and mobility programming as well as a project that seeks to enhance access to assistive devices for persons with disability. Participants: The development and implementation of ICIM involved an interdisciplinary mix of students from graduate and undergraduate programs (i.e. Health Sciences, Kinesiology, Psychology, Occupational Therapy, Computer Science, etc). These students were organized into collaborative co-design teams along with other stakeholders such as health care providers, researchers, persons with lived experience and other highly qualified personnel. Design/Intervention: ICIM originated from Parkwood’s training and coaching model, initially used in locomotor training therapy at the site. Fourth-year undergraduate students from the Health and Rehabilitation Sciences and Kinesiology program, enrolled in the practicum course, were integrated into this model that involved various stakeholders (i.e. physiotherapists, occupational therapists, recreational therapists, researchers, and etc.) From this beginning, we have scaled this program to support several initiatives involving students as essential members for each project that will be described in the manuscript. Core values and principles that we have employed across these programs include the following: • Learn by doing • Fostering bidirectional communication and collaboration • Working toward dismantling power imbalances • Facilitating progression – i.e., Senior students mentoring junior students Each of these have specific strategies that are implemented within the context of the particular Results: Due to the implementation of ICIM, there has been a multitude of positive results and successes within Parkwood Institute in both practice and in research – most notably in assisting a more intentional integration of clinical programs, research and education. Over the past year there have been more than 80 students integrated in the model from 10 disciplines across a wide range of academic careers. Impacts related to specific projects will be described across each of the case studies, with a focus on benefits for the clinical and research programs as well as for the participating students. Conclusions: The ICIM model fostered an enhanced mentorship and student experience allowing for personal and professional development. This model not only enhances program delivery but also amplifies the capacity for therapeutic activities that would otherwise be challenging to attain. The evident success of ICIM has garnered recognition and support from leadership, underscoring its value in bridging the gap between student learning and effective rehabilitation practices. This mutually beneficial relationship not only propels students towards comprehensive skill development but also impacts the quality of therapeutic interventions within the rehabilitation setting. The demonstrated success of ICIM positions it as a scalable model, poised to extend its benefits to additional initiatives across practice and research.

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