Patient-Centered Care with Chronic Diseases

A special issue of Nursing Reports (ISSN 2039-4403).

Deadline for manuscript submissions: 31 October 2024 | Viewed by 8361

Special Issue Editors


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Guest Editor
Comprehensive Health Research Centre (CHRC), Department of Sport and Health, School of Health and Human Development, University of Évora, 7000-671 Évora, Portugal
Interests: body composition; physical activity; exercise; health; ageing
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Guest Editor
Comprehensive Health Research Centre (CHRC), Department of Nursing, University of Évora, 7000-811 Évora, Portugal
Interests: breast-feeding; women's health; health management; health policies; quality of life

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Guest Editor Assistant
1. CRI.COM—Integrated Responsibility Centre for Bariatric Surgery and Metabolic Diseases, Hospital Espírito Santo de Évora, EPE, 7000-811 Evora, Portugal
2. CBIOS—Research Center for Biosciences & Health Technologies, Universidade Lusófona, 1749-024 Lisboa, Portugal
3. CIDEFES—Research Center in Sport, Physical Education, Exercise and Health, Universidade Lusófona, 1749-024 Lisboa, Portugal
Interests: nursing; obesity; bariatric surgery; chronic diseases; management diseases; nurse-led

Special Issue Information

Dear Colleagues,

This Nursing Reports Special Issue will focus on patient-centered care with chronic diseases. Systematic/scoping/narrative reviews or protocol of reviews related to these issues are welcome. One of the primary focuses is to identify the stakeholders in a health care model for Patient Centered Care on different chronic diseases. These models promote an improving satisfaction for patients, of the person’s needs, with a notably increased adherence to the treatment with patient-centered communication. In many pathologies, regarding evaluations, the diagnostic evaluation of person-centered data collection instruments, such as focus groups or semi-structured interviews with different care stakeholders, including patients, health professionals, and family members, is intended to understand the concerns and perceptions of patients. A patient-centered care model has been widely applied in several areas of clinical practice, with very positive results in the quality of care and patient satisfaction, emphasizing the individual needs of each one, and directing care in this same direction. 

This issue aimed to demonstrated with our studies, that it's necessary to put the client in the center of care, to increase better results and health related quality of life in general. Topics of interest include, but are not limited to the following: 

  • Investigation based on practice and personalized care approaches in healthcare;
  • Patient-centered care models in many chronic diseases or other condition with long-term care;
  • Studies investigating promotion of care;
  • Nurse-led care;
  • Intervention for the management of diseases;
  • New approaches of patient-centered care;
  • PROMs in chronic diseases.

Prof. Dr. Armando de Mendoça Raimundo
Prof. Dr. Maria Otília Brites Zangão
Guest Editors
Cláudia Amaro dos Santos
Guest Editor Assistant

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Nursing Reports is an international peer-reviewed open access quarterly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 1800 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • patient-centered care
  • chronic diseases
  • long-term
  • PROM's
  • nursing

Published Papers (4 papers)

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Research

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13 pages, 570 KiB  
Article
Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver
by Patricia Marín-Maicas, Mari Carmen Portillo, Silvia Corchón and Leire Ambrosio
Nurs. Rep. 2024, 14(1), 532-544; https://doi.org/10.3390/nursrep14010041 - 27 Feb 2024
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Abstract
(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with [...] Read more.
(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with long-term conditions. (2) Methods: A methodological proposal is presented that illustrates the adaptation of the EC-PC scale to the family caregiver. Three phases are proposed: adaptation of the items, panel of experts, and pre-test. (3) Results: In the adaptation phase, the items from the original EC-PC were modified to adapt them to the family caregiver, and new items were added associated with the differences in living with LTC from the perspective of family caregivers. In the panel of experts phase, a universal agreement was reached related to the clarity, relevance, and essentiality of the items included. In the pre-test phase, the content of the scale was verified quantitatively and qualitatively. (4) Conclusions: The content of the items of version 5 of the EC-PC-Family showed a high index of inter-judge agreement. When a phenomenon affects both patients and their environment, such as living with LTC, it is necessary to include both perspectives in the measurement tools. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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Review

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10 pages, 340 KiB  
Review
Strategies Used by Nurses to Maintain Person–Family Communication during the COVID-19 Pandemic: A Scoping Review
by Delfina Teixeira, Sandra Costa, Ana Branco, Ana Silva, Pablo Polo and Maria José Nogueira
Nurs. Rep. 2023, 13(3), 1138-1147; https://doi.org/10.3390/nursrep13030098 - 21 Aug 2023
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Abstract
Background: The COVID-19 pandemic made nurse–patient–family communication more difficult, reducing the understanding of the patient’s wishes and current care history. COVID-19 challenged healthcare teams to develop strategies to address these changes and provide more integrated care using the technology at their disposal. [...] Read more.
Background: The COVID-19 pandemic made nurse–patient–family communication more difficult, reducing the understanding of the patient’s wishes and current care history. COVID-19 challenged healthcare teams to develop strategies to address these changes and provide more integrated care using the technology at their disposal. So, this study aims to map the strategies used by nurses to maintain communication between the person hospitalized with COVID-19 and the family to understand which communication technologies were most used to maintain communication between the person and the family. Methods: A Scoping Review, according to the recommendations of the Joanna Briggs Institute [JBI] with the Preferred Reporting Items for Scoping Review extension (PRISMA-ScR), research conducted between September 2022 and January 2023. The search was conducted in the databases: Latin American and Caribbean Literature in Health Sciences (LILACS); Cumulative Index of Nursing and Allied Health Literature (CINAHL); Scientific Electronic Library Online (SciELO); Medical Literature Analysis and Retrieval System Online (Medline), using the descriptors: family, communication, nurses, hospitals and COVID-19, and the Boolean operators “AND”. The inclusion criteria were: original articles, in Portuguese, English, and Spanish, published from 2020 onwards, with access to full and free text. Results: It was found that most of the communication was unstructured with the family. The technologies most used by nurses were the telephone with video calls from the patients themselves and even from health professionals to maintain communication between the patient and the family. Conclusions: Communication between patients and families became essential during the pandemic, as it became a vital lifeline of human connection that supported the mental health of patients and their families. This study was not registered. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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12 pages, 472 KiB  
Review
Health Literacy in Adults with Chronic Diseases in the Context of Community Health Nursing: A Scoping Review
by Annike Morgane Nock, Sabine Metzing, Ivonne-Nadine Jürgensen and Corinna Petersen-Ewert
Nurs. Rep. 2023, 13(2), 823-834; https://doi.org/10.3390/nursrep13020072 - 24 May 2023
Cited by 3 | Viewed by 2719
Abstract
Background: Health literacy was identified as a main determinant in self-care of chronic diseases. This results in responsibilities for health professionals for daily practice. For primary care setting, special requirements arise due to the heterogeneity of communities. The objective of this scoping review [...] Read more.
Background: Health literacy was identified as a main determinant in self-care of chronic diseases. This results in responsibilities for health professionals for daily practice. For primary care setting, special requirements arise due to the heterogeneity of communities. The objective of this scoping review was to explore and map the scope of the research material on strategies led by community health nurses to improve health literacy in (patients with) chronic diseases. This review aimed to identify gaps in the literature and existing approaches on promoting health literacy by community nurse practitioners. Methods: The following criteria were included for the research: Adults with chronic diseases, health literacy, community health nursing and primary healthcare. All types of searches for studies from 1970 to present were carried out in electronic databases and in a Google and a Google Scholar search. The search procedure is presented in a flow chart. Results: From all reviewed studies, nine records were included in the review. Findings with regard to the increase in health literacy in self-management of chronically ill patients were identified. Conclusion: Studies focusing on specific demands with regard to the role of community health nurses need to be carried out in depth. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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Other

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10 pages, 677 KiB  
Systematic Review
Therapeutic Nursing Education in Promoting Self-Management of Adolescents with Type 1 Diabetes Mellitus: Integrative Literature Review
by Cláudia Pereira, Marta Catarino and Ana Clara Nunes
Nurs. Rep. 2023, 13(1), 470-479; https://doi.org/10.3390/nursrep13010043 - 16 Mar 2023
Viewed by 2433
Abstract
Diabetes Mellitus Type I (DM1) is an autoimmune disease, characterized by the total destruction of the beta (β) cells of the islets of Langerhans in the pancreas. This disease can strike people at any age, but it usually develops in children or young [...] Read more.
Diabetes Mellitus Type I (DM1) is an autoimmune disease, characterized by the total destruction of the beta (β) cells of the islets of Langerhans in the pancreas. This disease can strike people at any age, but it usually develops in children or young adults. Because of the high prevalence of DM1 in the young population, as well as all the difficulties in effective self-management in this population, with very specific characteristics, it is essential to develop therapeutic education interventions, with the aim of acquiring self-management skills. Thus, the main objective of this study is to identify the benefits of therapeutic nursing education interventions in promoting self-management of adolescents with DM1. For this, an Integrative Literature Review was carried out, using the EBSCOhost, PubMed, Scopus and Web of Science platforms. Six articles were eligible. In terms of results, benefits were identified in the health of adolescents, with the use of therapeutic education interventions by nurses, including the control of capillary glycemia, better acceptance of the pathology, improvement in body mass index, increased adherence to the therapeutic regime, a reduction in hospitalizations and complications, contribution to bio-psycho-social well-being and improvement quality of life. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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