Impact of Perceived Barriers on Patient Engagement and Attitudes towards Transition and Transfer
Abstract
:1. Introduction
2. Materials and Methods
2.1. Participants and Procedures
2.2. Measure
2.3. Statistical Analyses
3. Results
Participant and Practice Characteristics
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Variable | M (SD) or % |
---|---|
Age (in years) | 18.84 (1.26) |
Gender (% female) | 49.4 |
Race | |
White (non-Hispanic) | 71.6 |
African American | 21.0 |
Hispanic/Latino | 3.7 |
Asian | 0.0 |
Multiracial | 3.7 |
IBD diagnosis | |
Crohn’s disease | 80.2 |
Ulcerative colitis | 14.8 |
Indeterminate colitis | 4.9 |
Grade | |
11th grade | 9.9 |
12th grade | 39.5 |
College | 49.4 |
Other (e.g., working) | 1.2 |
Insurance type | |
Private/Commercial | 70.4 |
Public | 24.7 |
Self-pay | 4.9 |
Variable | Mean | Std Dev | Min | Max |
---|---|---|---|---|
Attitude toward transition | ||||
Confidence | 7.94 | 2.00 | 3.20 | 10.00 |
Motivation | 7.61 | 2.40 | 0.00 | 10.00 |
Importance | 9.08 | 1.29 | 4.90 | 10.00 |
Readiness | 7.74 | 2.16 | 0.00 | 10.00 |
Total Score | 80.81 | 17.29 | 24.75 | 100.00 |
Attitude toward transfer | ||||
Confidence | 7.30 | 2.49 | 0.00 | 10.00 |
Motivation | 7.29 | 2.34 | 0.00 | 10.00 |
Importance | 8.86 | 1.50 | 4.10 | 10.00 |
Readiness | 7.06 | 2.58 | 0.00 | 10.00 |
Total score | 76.27 | 19.52 | 13.00 | 100.00 |
Allocation of treatment responsibility | ||||
Medications | −6.35 | 9.60 | −21.00 | 17.00 |
Appointments | −0.55 | 11.71 | −21.00 | 21.00 |
Labs | −0.32 | 5.82 | −9.00 | 9.00 |
Total score | −9.51 | 24.29 | −54.00 | 40.00 |
Perceived barriers | 3.44 | 2.21 | 1.00 | 10.00 |
IBD self-efficacy | 52.52 | 6.79 | 34.00 | 65.00 |
Age | Transition Attitudes | Transfer Attitudes | ATR | IBD-SES | Barr | ||||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Conf | Mot | Imp | Ready | Total | Conf | Mot | Imp | Ready | Total | Meds | Appts | Labs | Total | ||||
Age | 1.00 | ||||||||||||||||
Transition | |||||||||||||||||
Conf | 0.20 | 1.00 | |||||||||||||||
Mot | 0.17 | 0.78 | 1.00 | ||||||||||||||
Imp | 0.31 | 0.48 | 0.48 | 1.00 | |||||||||||||
Ready | 0.30 | 0.83 | 0.82 | 0.49 | 1.00 | ||||||||||||
Total | 0.27 | 0.91 | 0.92 | 0.64 | 0.94 | 1.00 | |||||||||||
Transfer | |||||||||||||||||
Conf | 0.12 | 0.48 | 0.49 | 0.03 # | 0.50 | 0.48 | 1.00 | ||||||||||
Mot | 0.20 | 0.47 | 0.57 | 0.11 # | 0.52 | 0.53 | 0.81 | 1.00 | |||||||||
Imp | 0.18 | 0.46 | 0.47 | 0.51 | 0.45 | 0.52 | 0.42 | 0.48 | 1.00 | ||||||||
Ready | 0.17 | 0.53 | 0.53 | 0.22 ^ | 0.54 | 0.55 | 0.82 | 0.82 | 0.51 | 1.00 | |||||||
Total | 0.19 | 0.56 | 0.59 | 0.21 # | 0.58 | 0.59 | 0.92 | 0.92 | 0.64 | 0.94 | 1.00 | ||||||
ATR | |||||||||||||||||
Meds | −0.36 | −0.42 | −0.41 | −0.29 | −0.43 | −0.46 | −0.41 | −0.32 | −0.26 # | −0.35 | −0.39 | 1.00 | |||||
Appts | −0.52 | −0.48 | −0.28 | −0.33 | −0.37 | −0.41 | −0.26 # | −0.23 # | −0.15 ^ | −0.26 # | −0.27 # | 0.62 | 1.00 | ||||
Labs | −0.48 | −0.43 | −0.28 | −0.33 | −0.38 | −0.40 | −0.21 ^ | −0.19 ^ | −0.19 ^ | −0.19 ^ | −0.22 # | 0.47 | 0.83 | 1.00 | |||
Total | −0.51 | −0.49 | −0.36 | −0.36 | −0.44 | −0.47 | −0.34 | −0.28 | −0.24 # | −0.32 | −0.34 | 0.84 | 0.94 | 0.83 | 1.00 | ||
IBD-SES | 0.14 | 0.36 | 0.36 | 0.29 | 0.35 | 0.39 | 0.23 | 0.20 | 0.38 | 0.26 | 0.29 | −0.23 | −0.18 | −0.19 | −0.20 | 1.00 | |
Barriers | 0.16 | −0.15 | −0.12 | 0.13 | −0.10 | −0.10 | −0.52 | −0.36 | −0.06 | −0.38 | −0.41 | 0.10 | 0.00 | −0.07 | 0.01 | −0.18 | 1.00 |
Direct Effects | Estimate | Std Estimate | CI LL | CI UL | |||
---|---|---|---|---|---|---|---|
ATR Meds On | |||||||
Self-Efficacy | −0.11 | −0.08 | −0.33 | 0.20 | |||
Attitude toward Transition | −0.24 | −0.43 | −0.61 | −0.23 | |||
Perceived Barriers | 0.26 | 0.06 | −0.19 | 0.29 | |||
ATR Appts On | |||||||
Self-Efficacy | −0.06 | −0.03 | −0.26 | 0.19 | |||
Attitude toward Transition | −0.27 | −0.40 | −0.60 | −0.20 | |||
Perceived Barriers | −0.26 | −0.05 | −0.27 | 0.16 | |||
ATR Labs On | |||||||
Self-Efficacy | −0.06 | −0.07 | −0.28 | 0.12 | |||
Attitude toward Transition | −0.12 | −0.36 | −0.57 | −0.15 | |||
Perceived Barriers | −0.32 | −0.12 | −0.30 | 0.06 | |||
Self-Efficacy On | |||||||
Attitude toward Transition | 0.15 | 0.38 | 0.18 | 0.55 | |||
Perceived Barriers | −0.43 | −0.14 | −0.34 | 0.07 | |||
Attitude toward Transition On | |||||||
Perceived Barriers | −0.78 | −0.10 | −0.31 | 0.13 | |||
Total Indirect Effects | Estimate | Std Estimate | CI LL | CI UL | Effect Size | CI Lower | CI Upper |
Barriers to ATR Meds | 0.25 | 0.06 | −0.05 | 0.17 | 0.02 | −0.02 | 0.06 |
Barriers to ATR Appointments | 0.24 | 0.05 | −0.05 | 0.15 | 0.04 | −0.05 | 0.14 |
Barriers to ATR Labs | 0.13 | 0.05 | −0.04 | 0.16 | 0.01 | 0.00 | 0.02 |
Direct Effects | Estimate | Std Estimate | CI Lower | CI Upper | |||
---|---|---|---|---|---|---|---|
ATR Meds On | |||||||
Self-Efficacy | −0.22 | −0.16 | −0.39 | 0.10 | |||
Attitude toward Transfer | −0.19 | −0.37 | −0.63 | −0.13 | |||
Perceived Barriers | −0.29 | −0.07 | −0.28 | 0.17 | |||
ATR Appts On | |||||||
Self-Efficacy | −0.21 | −0.12 | −0.34 | 0.10 | |||
Attitude toward Transfer | −0.17 | −0.29 | −0.55 | −0.01 | |||
Perceived Barriers | −0.76 | −0.14 | −0.33 | 0.06 | |||
ATR Labs On | |||||||
Self-Efficacy | −0.13 | −0.15 | −0.36 | 0.05 | |||
Attitude toward Transfer | −0.07 | −0.25 | −0.47 | −0.02 | |||
Perceived Barriers | −0.54 | −0.21 | −0.38 | −0.02 | |||
Self-Efficacy On | |||||||
Attitude toward Transfer | 0.09 | 0.26 | 0.04 | 0.46 | |||
Perceived Barriers | −0.21 | −0.07 | −0.29 | 0.16 | |||
Attitude toward Transfer On | |||||||
Perceived Barriers | −3.64 | −0.41 | −0.60 | −0.18 | |||
Total Indirect Effects | Estimate | Std Estimate | CI Lower | CI Upper | Effect Size | CI Lower | CI Upper |
Barriers to ATR Meds | 0.79 | 0.18 | 0.06 | 0.36 | 0.07 | 0.02 | 0.14 |
Barriers to ATR Appts | 0.75 | 0.14 | 0.04 | 0.31 | 0.13 | 0.04 | 0.28 |
Barriers to ATR Labs | 0.34 | 0.13 | 0.04 | 0.28 | 0.01 | 0.00 | 0.03 |
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Drovetta, M.; Cramer, E.; Linafelter, A.; Sevart, J.; Maddux, M. Impact of Perceived Barriers on Patient Engagement and Attitudes towards Transition and Transfer. Children 2022, 9, 1273. https://doi.org/10.3390/children9091273
Drovetta M, Cramer E, Linafelter A, Sevart J, Maddux M. Impact of Perceived Barriers on Patient Engagement and Attitudes towards Transition and Transfer. Children. 2022; 9(9):1273. https://doi.org/10.3390/children9091273
Chicago/Turabian StyleDrovetta, Megan, Emily Cramer, Alaina Linafelter, Jordan Sevart, and Michele Maddux. 2022. "Impact of Perceived Barriers on Patient Engagement and Attitudes towards Transition and Transfer" Children 9, no. 9: 1273. https://doi.org/10.3390/children9091273