Palliative Care and End-of-Life Care

A special issue of Nursing Reports (ISSN 2039-4403).

Deadline for manuscript submissions: 31 July 2024 | Viewed by 2595

Special Issue Editor


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Guest Editor
Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds LS2 9NL, UK
Interests: palliative care; end-of-life care; digital technology; applied health research; user involvement; stakeholder engagement; global health research; low-resource settings
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Special Issue Information

Dear Colleagues,

The global demand for palliative and end-of-life care continues to rise as populations age, with a concurrent increase in the burden of non-communicable—as well as some communicable—diseases. Access to palliative care is limited worldwide, with only a minority of those in need receiving timely access to palliative and end-of-life care, particularly in low-resource settings. This is due to factors such as financial pressures, underdeveloped infrastructure, geographical constraints (e.g., rural settings), and environmental factors. Access to effective palliative care is a critical component of universal health coverage and needs to be achieved in ways that mitigate, circumvent, or overcome such inhibiting factors.

Many people nearing the end of their lives face challenges related to life-threatening illnesses, including but not limited to their physical, psychological, social, spiritual, and communication needs. With the early integration of the person-centered approach to palliative care, the quality of life of patients and their families can be improved.

Innovative models of palliative care delivery continue to be developed globally to increase access to care for people with life-threatening illnesses. One approach, further catalyzed by the COVID-19 pandemic, is the use of digital health capabilities and technological innovation. If developed and implemented well, digitally enabled models of care could strengthen progress towards a more equitable state of universal health coverage. However, it is critical to ensure digitally enabled models of care are implemented optimally to meet the needs of service users, their caregivers, and their healthcare providers.

This Special Issue seeks to draw together much-needed evidence to guide the development of palliative care and end-of-life care services globally, particularly with a focus on the application of digital technologies.

You may choose our Joint Special Issue in IJERPH.

Dr. Matthew Allsop
Guest Editor

Manuscript Submission Information

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Keywords

  • palliative care
  • end-of-life care
  • digital technology
  • health research
  • user involvement
  • global health

Published Papers (2 papers)

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Research

20 pages, 1682 KiB  
Article
Description and Analysis of Research on Death and Dying during the COVID-19 Pandemic, Published in Nursing Journals Indexed in SCOPUS
by Leticia Cuellar-Pompa, José Ángel Rodríguez-Gómez, María Mercedes Novo-Muñoz, Natalia Rodríguez-Novo, Yurena M. Rodríguez-Novo and Carlos-Enrique Martínez-Alberto
Nurs. Rep. 2024, 14(2), 655-674; https://doi.org/10.3390/nursrep14020050 - 22 Mar 2024
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Abstract
Aim: To offer an overall picture of the research published regarding the different aspects of death and dying during the COVID-19 pandemic in journals covering the field of nursing in the Scopus database. Design: bibliometric analysis. Methods: The metadata obtained were exported from [...] Read more.
Aim: To offer an overall picture of the research published regarding the different aspects of death and dying during the COVID-19 pandemic in journals covering the field of nursing in the Scopus database. Design: bibliometric analysis. Methods: The metadata obtained were exported from Scopus for subsequent analysis through Bibliometrix. Using the VOSviewer co-word analysis function, the conceptual and thematic structure of the publications was identified. Results: A total of 119 papers were retrieved, with the participation of 527 authors. The publications were found in 71 journals covering the nursing area. The main lines of research revolved around the keywords “palliative care” and “end-of-life care” in regard to the ethical, psychological, and organizational challenges faced by the health professionals who cared for these patients. Conclusion: The results obtained offer a range of data and images that characterize the scientific production published on this topic, coming to the conclusion that, due to the multifaceted and multidisciplinary approach to the experience of death, care, and accompaniment in the dying process, bibliometric maps improve the comprehensive understanding of the semantic and conceptual structure of this field of research. This study was retrospectively registered with the OSF Registries on the 14 March 2024. Full article
(This article belongs to the Special Issue Palliative Care and End-of-Life Care)
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15 pages, 740 KiB  
Article
How to Manage the Suffering of the Patient and the Family in the Final Stage of Life: A Qualitative Study
by E. Begoña García-Navarro, Sonia Garcia Navarro and María José Cáceres-Titos
Nurs. Rep. 2023, 13(4), 1706-1720; https://doi.org/10.3390/nursrep13040141 - 06 Dec 2023
Cited by 1 | Viewed by 1512
Abstract
Background: The end of life and death have changed from being issues managed within the family, assumed as part of life, to occur within health institutions for the majority of patients. The amount of patients dying at home has decreased, and the roles [...] Read more.
Background: The end of life and death have changed from being issues managed within the family, assumed as part of life, to occur within health institutions for the majority of patients. The amount of patients dying at home has decreased, and the roles of families and communities in death and dying have become involuted, threatening related traditions and knowledge. As a result, a need to promote the end of life at home in this new self-serving society has arisen. In that context, the main objective of this study was to find out what patients and their families need during the end-of-life process in order to feel effectively accompanied at this time. Methods: With that objective, a descriptive qualitative study was conducted via the content analysis of data from semi-structured interviews and focus groups. This research adhered to the COREQ guidelines. The sample consisted of 36 informants selected via intentional sampling of family members and patients integrated into the Comprehensive Palliative Care Process (PAI Paliativos). Results: The results suggest the existence of several common needs such as communication and presence, including the conspiracy of silence as an important factor generating suffering for both. However, there are specific needs such as autonomy, dignity, and respect for patients, which must be taken into account. Conclusions: The results of this study will allow us to establish intervention strategies for effective accompaniment of patients’ family members at the end of life and the avoidance of ethnocentrism in this process. This study was retrospectively registered with the (nursrep-1194226) on the (21 April 2023). Full article
(This article belongs to the Special Issue Palliative Care and End-of-Life Care)
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